Nickelpicklemama's Blog

October 2, 2009

Down Syndrome Language Guidelines

Filed under: Uncategorized — by nickelpicklemama @ 11:14 am

Before I continue my family’s story, I wanted to give information on the correct terminology regarding Down syndrome. After my nephew was diagnosed, I fled to the Internet seeking information, and found the following. It is published by the National Down Syndrome Congress; a wonderful resource. I printed the information the night Peter was born so that it could be inserted into his (and Julie’s) chart.

Public Awareness Language Guidelines

The correct name of this diagnosis is Down syndrome. There is no apostrophe (Down). The “s” in syndrome is not capitalized (syndrome).

An individual with Down syndrome is an individual first and foremost. The emphasis should be on the person, not the disability. A person with Down syndrome has many other qualities and attributes that can be used to describe them.

Encourage people to use people-first language. “The person with Down syndrome”, not “the Down syndrome person.” A person with Down syndrome is not “a Downs”.

Words can create barriers. Recognize that a child is “a child with Down syndrome,” or that an adult is “an adult with Down syndrome.” Children with Down syndrome grow into adults with Down syndrome; they do not remain eternal children. Adults enjoy activities and companionship with other adults.

It is important to use the correct terminology. A person “has” Down syndrome, rather than “suffers from,” “is a victim of,” “is diseased with” or “afflicted by.”

Each person has his/her own unique strengths, capabilities and talents. Try not to use the clichĂ©s that are so common when describing an individual with Down syndrome. To assume all people have the same characteristics or abilities is demeaning. Also, it reinforces the stereotype that “all people with Down syndrome are the same.”

Here are some basic guidelines for using People First Language:

Put people first, not their disability
A “person with a disability”, not a “disabled person”
A “child with autism”, not an “autistic child”
Use emotionally neutral expressions
A person “with” cerebral palsy, not “afflicted with” cerebral palsy
An individual who had a stroke, not a stroke “victim”
A person “has” Down syndrome, not “suffers from” Down syndrome
Emphasize abilities, not limitations
A person “uses a wheelchair”, not “wheelchair-bound”
A child “receives special education services”, not “in special ed”
Adopt preferred language
A “cognitive disability” or “intellectual disability” is preferred over “mentally retarded”
“Typically developing” or “typical” is preferred over “normal”
“Accessible” parking space or hotel room is preferred over “handicapped”

Courtesy of the National Down Syndrome Congress
http://www.ndsccenter.org/

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